Science Issues

Presenting our research to a roomful, not just a row full, of rare-disease patients and caregivers was an extraordinary experience.

Susannah Fox presented research on how people, particularly those living with rare disease, use online health resources and what the rest of us can learn from them.

Thirty percent of U.S. adults provide support to a loved one. The internet is a key information and communications resource for this front-line labor force.

Grassroots contribution to health research just got a boost. Is it time for us to measure personal genetic testing?

The American Journal of Managed Care recently published a commentary entitled, "Bowling Alone, Healing Together: The Role of Social Capital in Delivery Reform."

A 5-minute video overview of peer-to-peer health care.

Pew Internet asked two questions about "self-tracking" in 2010 - how should we expand this area of our research?

Seven-in-ten Japanese say their country should reduce its reliance on nuclear energy. Skepticism about nuclear power is coupled with widespread dissatisfaction with the government’s performance: eight-in-ten say the government has done a poor job dealing with the Fukushima crisis and six-in-ten disapprove of how Tokyo has handled the overall recovery from the earthquake and tsunami.

While Japanese prime Minister Yoshihiko Noda has been trying to persuade local communities it is safe to restart two nuclear reactors, 70% of Japanese say their country should reduce its reliance on nuclear energy.

Susannah Fox will serve as a "white hat" advisor to participants in the Health Data Initiative Forum.