Healthcare Online

Presenting our research to a roomful, not just a row full, of rare-disease patients and caregivers was an extraordinary experience.

Susannah Fox presented research on how people, particularly those living with rare disease, use online health resources and what the rest of us can learn from them.

Thirty percent of U.S. adults provide support to a loved one. The internet is a key information and communications resource for this front-line labor force.

Grassroots contribution to health research just got a boost. Is it time for us to measure personal genetic testing?

A 5-minute video overview of peer-to-peer health care.

Pew Internet asked two questions about "self-tracking" in 2010 - how should we expand this area of our research?

Susannah Fox will serve as a "white hat" advisor to participants in the Health Data Initiative Forum.

A conversation about rare disease, the impact of the internet, and love.

Stephen Wolfram predicts that we will all self-track some day, but a Pew Internet survey suggests we have a long way to go. Just 1 in 4 internet users track health data online.

As mobile, social tools spread throughout the population, people are connecting with each other. Why not harness those tools for health?