report | Jan 6, 2010
Social media is simply the current expression of patient activation and engagement. But this time e-patients are part of a larger cultural change that assumes access to information, enables communication among disparate groups, and expects progress.
presentation | Dec 14, 2009
Susannah Fox discusses Pew Internet's health research, including a special survey of people living with cancer.
report | Nov 20, 2009
Quick answers to frequently-asked questions: Is a cultural shift affecting health care? How do people judge the quality of health information online? Are patients ready for this?
report | Nov 16, 2009
NPR’s Morning Edition story, "Patients Turn to Online Buddies for Help Healing," combined research and real-life examples, participatory medicine and health data rights.
presentation | Nov 12, 2009
Susannah Fox will discuss how adults living with chronic conditions such as high blood pressure and heart disease are - or are not - using the internet.
report | Nov 8, 2009
The FDA should hear about the reality of the information marketplace, which is increasingly mobile and social, not about the past failings of consumers to check the source and date of health information online.
presentation | Nov 6, 2009
As part of a panel on privacy, security, and confidentiality, Susannah Fox discussed the "shadow economy" of health data that has sprung up, with all the dangers and opportunities of an unregulated market.
presentation | Oct 27, 2009
New trend charts showing how e-patients use the internet and search for health information online.
presentation | Oct 26, 2009
Connected patients spread new ideas, new treatments, and new ways of approaching a condition. Put them on your team.
presentation | Oct 7, 2009
In this talk to medical librarians, Lee Rainie covered how e-patients and their caregivers have become a force in the medical world. In addition, he looked at the many ways that e-patients are using the internet to research and respond to their he...